We are having a wonderful summer this year, Haleigh is at such a fun age, she loves the beach and the splash pad, and i am sure she would love the pool too, that is if we had one.
We live close to the beach depending on where we want to go it takes 45minutes to an hour and a half to get there, there whole time Haleigh says, mama we are going to the beach! She is such an out doors girl.
We had a great 4th of July, BBQ with family, then fireworks at the battleship. Haleigh was not even scared of them. She actually called them bubbles, so funny!
Yesterday we took her out on the boat, she cought 3 sharkes, they were babies so we had to throw them back, but she touched them and was loving being out on the water. I thought she might be scared a little, and she may have at first, but didn't show it and was walking around the boat in no time, and liked the riding out to the old dauphin island light house.
We are using lots of sunscreen, and we have had her hats on. So even with all the sun time she is still very much protected.
We are starting to think about her next surgery, but its will be this fall so the summer is ours!
Thursday, July 14, 2011
Monday, June 27, 2011
Friday, June 24, 2011
Quick update on Stitches
Thursday, June 16, 2011
The Emergency Room X2
On Sunday we didn't go to church, we had a family reunion to go to, we had been looking forward to it for a month! And we had a really good time while we were there. The kids love it there and I am going to take them back this summer! Anyway the aunt's house we were at has a pool, and my kids are half fish, so they were all having a great time! Haleigh was jumping off the diving board and was doing wonderfully, her suite has a life vest with a zipper on it, and when she jumped in for like the 50th time her zipper popped up and the force of it gashed into her chin, she came up bleeding.
Off to the emergency room we go. I went to the closest one seeing that we were about 45 mins from the closest one, even though its my least favorite and where Haleigh was born. So we get in the back pretty quick and we find out they can't use the glue like we had hoped, I asked them to put the stitches closer together, but they said they would only put what was needed to hold it together. Ugh! Another strike against that hospital! Any way she "needed" 5 of them. Its on the underside of her chin so even though its going to be a scar no one will be able to see it unless she is looking straight up. We were out of the hospital about 3 hours after we got there.
We kept her stitches clean, used antibiotic soap and band aids with antibiotic ointment in them and letting it air out while she slept.
Tuesday morning she got a bath and I put on her band-aid, I noticed her skin was slightly pink so I decided to pick up some antibiotic ointment so I could do a good rub in, when we got home. We then took the kids to lunch and to the bass pro shop, they are about 45 mins from our house. At lunch Haleigh got food all over her band-aid, so I decided to take it off, I didn't have another one but I knew no band-aid was better than one that was trapping in foods. When we took it off there was a blister. And that concerned me quite a bit. I have 5 children and 4 of them have had stitches, Haleigh had stitches after her surgery too. None of them ever looked like this. It was 3PM so I was not making it to Haleigh's peditrician office that day, we decided to wait and see if it looked worse we would take her to the ER, the same or better to her Dr in the morning. Well we got home at 530, and the blister popped, she screamed and when I picked her up she felt like she had a fever. So off to the ER we went. AGAIN!
This time the ER is packed! On arrival her temperature was 102, we are given Motrin to bring down her fever and we wait for 2 hours in the waiting room. While there I leaned that they actually have 2 areas in the ER. One is the actual ER where you see a Dr. , the 2nd is called fast track where you are seen by a nurse practice, now don't get me wrong I have nothing bad to say about them, they are the ones who took care of my babies in the NICU (after the 1st few days) but I think a doctor should have seen her! Well no doctor saw her the 2nd night either we saw a physicians assistant and I have no problem with them either our peditrician's office has one that handles all well visits. We waited 3 hours to see a PA for 10 mins! He took one look and said yeah looks infected wait right here I will get you a RX, came back handed me a paper to sign have me a copy and her 2 Rx's. One is an antibiotic by mouth one is an ointment. Then he said to bring her back in 3 days, for what I asked? For them to recheck her and to take out her stitches. Um.... No thanks I will take her to her doctor on Friday!
So now its Thursday and it still tooks awful! So I am hoping her Dr can shine some light on how she is healing.
Off to the emergency room we go. I went to the closest one seeing that we were about 45 mins from the closest one, even though its my least favorite and where Haleigh was born. So we get in the back pretty quick and we find out they can't use the glue like we had hoped, I asked them to put the stitches closer together, but they said they would only put what was needed to hold it together. Ugh! Another strike against that hospital! Any way she "needed" 5 of them. Its on the underside of her chin so even though its going to be a scar no one will be able to see it unless she is looking straight up. We were out of the hospital about 3 hours after we got there.
We kept her stitches clean, used antibiotic soap and band aids with antibiotic ointment in them and letting it air out while she slept.
Tuesday morning she got a bath and I put on her band-aid, I noticed her skin was slightly pink so I decided to pick up some antibiotic ointment so I could do a good rub in, when we got home. We then took the kids to lunch and to the bass pro shop, they are about 45 mins from our house. At lunch Haleigh got food all over her band-aid, so I decided to take it off, I didn't have another one but I knew no band-aid was better than one that was trapping in foods. When we took it off there was a blister. And that concerned me quite a bit. I have 5 children and 4 of them have had stitches, Haleigh had stitches after her surgery too. None of them ever looked like this. It was 3PM so I was not making it to Haleigh's peditrician office that day, we decided to wait and see if it looked worse we would take her to the ER, the same or better to her Dr in the morning. Well we got home at 530, and the blister popped, she screamed and when I picked her up she felt like she had a fever. So off to the ER we went. AGAIN!
This time the ER is packed! On arrival her temperature was 102, we are given Motrin to bring down her fever and we wait for 2 hours in the waiting room. While there I leaned that they actually have 2 areas in the ER. One is the actual ER where you see a Dr. , the 2nd is called fast track where you are seen by a nurse practice, now don't get me wrong I have nothing bad to say about them, they are the ones who took care of my babies in the NICU (after the 1st few days) but I think a doctor should have seen her! Well no doctor saw her the 2nd night either we saw a physicians assistant and I have no problem with them either our peditrician's office has one that handles all well visits. We waited 3 hours to see a PA for 10 mins! He took one look and said yeah looks infected wait right here I will get you a RX, came back handed me a paper to sign have me a copy and her 2 Rx's. One is an antibiotic by mouth one is an ointment. Then he said to bring her back in 3 days, for what I asked? For them to recheck her and to take out her stitches. Um.... No thanks I will take her to her doctor on Friday!
Friday, June 3, 2011
Assumptions
Sometimes when you over hear people talking your can make assumptions about what they aretalking about, and most times you would be wrong. A lot of times what you over hear are people talking about what they have assumed has happened in the 1st place. This is how a rumor is started. This is how friendships end and how adults get their feelings hurt.
We recently learned that we are being talked about by people making assumptions about things that are truthfully none of their business. I have tried to clear things up simply by a statement, but I can not stop thinking about how people that were suppose to be our friends are acting, so while I am not going to use any names I feel I must lay somethings out, even if they are our private business.
In January of this year 2011 we like a lot of Americans got our W2 tax forms in the mail and our 1099's, early Feb. We filed our taxes 2 weeks later we got our refund and decided to buy a boat. Why? A few reasons actually 1. It was a great deal, 2. It was something we had been thinking about for more than a year. 3. We knew that we would be dealing with Haleigh's surgeries for a while and we would be unable to take a real family vacation because of it, we also knew we could take the boat and go camping and have a ton of family fun that way for cheaper than say Disney World, 4. We wanted it. So with all that we got it! And we are so glad we did.
A couple weeks later my van motor blew up and because of how old it was, we needed to decide to either rebuild the motor and risk something else major going wrong, or crushing it and buying another used van or SUV. After finding out the cost of the repairs and what all else was actually wrong with it. We decided to buy an SUV, we put it on hold while we went for Haleigh's 1st surgery. 3 weeks later we took most of what was left and put down on our SUV. We have 5 kids so a car was not a choice for us, and we had to have a vehicle that fit is all with seat belts. While jason has a truck, it seats 5, there are 7 of us! If we would have know our van was going to mess up, would we have got the boat? Not at that moment, but eventually yes we would have.
There is a lot of talk about what we choild have done or what they would have done with that money, while raising money for surgeries for our daughter and something no one has thought of is, our income tax returns no matter how big or small has always went to all of our kids, not just one. The boat and SUV is something they all wanted and needed. My kids need to have fun, my kids deserve to have nice things, and have a way to get to and from the places we need to go without sitting on someones lap!
None of the money we used to do these things were raised for Haleigh's travel. Therefore is really not anyones business, and if anyone has problems with the way we spent our income tax money then I feel you should just withstand from donating to her.
I have never assumed how anyone is paying or has paid for anything, and the fact that I have to justify everything we did and see doing to people who I thought were my friends has hurt me more than I have been in a long long time.
We recently learned that we are being talked about by people making assumptions about things that are truthfully none of their business. I have tried to clear things up simply by a statement, but I can not stop thinking about how people that were suppose to be our friends are acting, so while I am not going to use any names I feel I must lay somethings out, even if they are our private business.
In January of this year 2011 we like a lot of Americans got our W2 tax forms in the mail and our 1099's, early Feb. We filed our taxes 2 weeks later we got our refund and decided to buy a boat. Why? A few reasons actually 1. It was a great deal, 2. It was something we had been thinking about for more than a year. 3. We knew that we would be dealing with Haleigh's surgeries for a while and we would be unable to take a real family vacation because of it, we also knew we could take the boat and go camping and have a ton of family fun that way for cheaper than say Disney World, 4. We wanted it. So with all that we got it! And we are so glad we did.
A couple weeks later my van motor blew up and because of how old it was, we needed to decide to either rebuild the motor and risk something else major going wrong, or crushing it and buying another used van or SUV. After finding out the cost of the repairs and what all else was actually wrong with it. We decided to buy an SUV, we put it on hold while we went for Haleigh's 1st surgery. 3 weeks later we took most of what was left and put down on our SUV. We have 5 kids so a car was not a choice for us, and we had to have a vehicle that fit is all with seat belts. While jason has a truck, it seats 5, there are 7 of us! If we would have know our van was going to mess up, would we have got the boat? Not at that moment, but eventually yes we would have.
There is a lot of talk about what we choild have done or what they would have done with that money, while raising money for surgeries for our daughter and something no one has thought of is, our income tax returns no matter how big or small has always went to all of our kids, not just one. The boat and SUV is something they all wanted and needed. My kids need to have fun, my kids deserve to have nice things, and have a way to get to and from the places we need to go without sitting on someones lap!
None of the money we used to do these things were raised for Haleigh's travel. Therefore is really not anyones business, and if anyone has problems with the way we spent our income tax money then I feel you should just withstand from donating to her.
I have never assumed how anyone is paying or has paid for anything, and the fact that I have to justify everything we did and see doing to people who I thought were my friends has hurt me more than I have been in a long long time.
Wednesday, May 18, 2011
Some Medical Stuff
Children born with CMN are suppose to see a dermatologist from what I read at the least every year. Haleigh has not seen one in a while, the one we saw was 3 hours from here in Birmingham and she was not so nice, we decided not to go back as she brushed off all our concerns and never answered our questions.
All the information I have gotten has came from plastic surgeons that we have seen, her pediatrician, and the Internet that mainly being http://www.nevus.org/ and the Nevus Network. And of course other parents with children like Haleigh along with adults who have the same skin condition as Haleigh.
While we are talking medical, I talked to Dr C last night and E mailed him some pictures of Haleigh's eye. The corner of her eye where it meets the bridge of her nose, the skin there looks puckered, so with Dr.C's recommendation we started some Bio Oil tonight. She really hated it because I have to massage it in, but she will get use to it, I just wish she didn't have to. We also have to use more sunscreen. We have been using it, but I didn't realize she needed it even if we were just going for a car ride and she would not be out in the sun, but from the house to the car, UV rays still go through the tented windows. I never really thought of that. We know now though and are doing a better job with that too.
All the information I have gotten has came from plastic surgeons that we have seen, her pediatrician, and the Internet that mainly being http://www.nevus.org/ and the Nevus Network. And of course other parents with children like Haleigh along with adults who have the same skin condition as Haleigh. When I took Haleigh to the Dr about her asthma on Monday, he asked if we had been back to the dermatologist, because he has not gotten a report from her in a while. I told him the truth, that we had not went back and would not take her back there. He suggested since we had better insurance than we did before and could go with out a reference from him to call around and make an appointment. I am not sure why we really need to go. We are not going for test I guess its just a check up with them. She has an appointment for Tuesday or next week.
While we are talking medical, I talked to Dr C last night and E mailed him some pictures of Haleigh's eye. The corner of her eye where it meets the bridge of her nose, the skin there looks puckered, so with Dr.C's recommendation we started some Bio Oil tonight. She really hated it because I have to massage it in, but she will get use to it, I just wish she didn't have to. We also have to use more sunscreen. We have been using it, but I didn't realize she needed it even if we were just going for a car ride and she would not be out in the sun, but from the house to the car, UV rays still go through the tented windows. I never really thought of that. We know now though and are doing a better job with that too.Chicken 4 Haleigh
Tuesday Night we held a fundraiser at Zaxby's, they were awesome, and I thought we did really well, 200$ in 4 hours and all I had to do was make some milk shakes, and clean some tables! But the marketing rep that was there said it was a super slow day, and she was upset that we didn't make more money. So she offered to let us have another night at a different store! I can't believe they are so willing to hand over 10% of their sales to us more than once! We have set a tentative date for the last Tuesday in June. I never knew how giving and open our community was until now. We also made 70$ in tips last night.  |
| Haleigh having a great time! |
We greatly appreciate all of our friends and family that came out to support us and help us washing dishes and welcoming people at the door! As well as everyone who came and ate the food.
 |
Marilyn, Haleigh's NaNa, getting balloons
|
 |
| Crystal and her children (Haleigh -held, Collin, Landom, Aden, & Madalyn) |
 |
| Milkshake team....lol |
Subscribe to:
Posts (Atom)