Saturday, May 25, 2013
Another Child in Heaven
It's happened again. A Family has lost their child. A child that had the Same skin condition that Haleigh has. Sadly the child developed melanoma and died of cancer. I'm so sadden by this and can't help but to think of Haleigh.
I think I'm doing things right. We use sun screen made from Zinc Oxide and apply it everyday. Even in the winter her face has sunscreen on it and she smells of summer days. It's become her natural sent I believe. I can't keep her from the sum. I can't cover her face its always exposed to the elements. And there is nothing I can so about it.
I've always been on the line about removal and I know more than ever that I'm doing it right by removing but I wish it wasn't taking so long. I wish I could have made the first expander go better. Instead we start over. We go again and try to do what's best for her. To make choices for her that we hope if she understood she would make for herself.
So tonight I pray for the family that lot their child. And I hold my closer and pray that I don't loose her for the same reason.
I think I'm doing things right. We use sun screen made from Zinc Oxide and apply it everyday. Even in the winter her face has sunscreen on it and she smells of summer days. It's become her natural sent I believe. I can't keep her from the sum. I can't cover her face its always exposed to the elements. And there is nothing I can so about it.
I've always been on the line about removal and I know more than ever that I'm doing it right by removing but I wish it wasn't taking so long. I wish I could have made the first expander go better. Instead we start over. We go again and try to do what's best for her. To make choices for her that we hope if she understood she would make for herself.
So tonight I pray for the family that lot their child. And I hold my closer and pray that I don't loose her for the same reason.
Monday, April 29, 2013
Painting for Haeigh
Thanks to everyone who came to paint with Haleigh this year. We had such a great time!!
I was so happy to have both of Haeighs grandmothers there and 3 of her 4 aunts.
I was so happy to have both of Haeighs grandmothers there and 3 of her 4 aunts.
Wednesday, April 24, 2013
The next step
The Next Step is actually the last step we made. Insert an expander.
We made a trip up to Birmingham yesterday. We haven't been since they took the expander out. The dr had some personal issues and then I was sick so this was the 3rd appointment and we finally made it up there.
Dr. Grant said Haleigh has healed well and despite the infection he feels the best course of action is still expansion for removal. At first he said we could wait a while and timing was up to us summer or fall. Then he said Summer because Haleigh's face is growing at different rates. One side is actually growing faster than the other. He said that he can fix it but not until the Nevus is removed. So we decided that June 26th would be the date to put the expander in. So removal would be the end of October.
Even with the set back Dr. Grant believes he can get everything done before she starts 1st grade. Lips are still going to be a harder surgery done all by them self. And then evening out everything.
I've been talking to Haleigh about her next bubble and she demands she is put to sleep for all "poky things". Poor baby I hate to see her go through so very much.
We made a trip up to Birmingham yesterday. We haven't been since they took the expander out. The dr had some personal issues and then I was sick so this was the 3rd appointment and we finally made it up there.
Dr. Grant said Haleigh has healed well and despite the infection he feels the best course of action is still expansion for removal. At first he said we could wait a while and timing was up to us summer or fall. Then he said Summer because Haleigh's face is growing at different rates. One side is actually growing faster than the other. He said that he can fix it but not until the Nevus is removed. So we decided that June 26th would be the date to put the expander in. So removal would be the end of October.
Even with the set back Dr. Grant believes he can get everything done before she starts 1st grade. Lips are still going to be a harder surgery done all by them self. And then evening out everything.
I've been talking to Haleigh about her next bubble and she demands she is put to sleep for all "poky things". Poor baby I hate to see her go through so very much.
Monday, April 22, 2013
On the Rode Again
In about 7 hours we will be headed up to Birmingham again to see what's in store for Haleigh. Suppose to be a pretty day. Maybe we can get by without driving through rain. I will update as soon as I can about what the dr says!!
Wednesday, April 17, 2013
Next Up
Just a small update.
Haleigh is doing very well. She has fully recovered from her infection and two very close together surgeries. She's growing and becoming a big kids. Her next appointment is Tuesday the 23rd. We will be discussing when her next surgery will be and how to go about doing fills. I know I won't agree to do them at home. I'm not sure if the doctor will want to find a dr here or for us to drive to Birmingham every week. I don't think doing the fills at home was what caused the infection but I am not comfortable doing them at all. Especially since I'm on my own with no help holding or detracting her.
Haleigh is doing very well. She has fully recovered from her infection and two very close together surgeries. She's growing and becoming a big kids. Her next appointment is Tuesday the 23rd. We will be discussing when her next surgery will be and how to go about doing fills. I know I won't agree to do them at home. I'm not sure if the doctor will want to find a dr here or for us to drive to Birmingham every week. I don't think doing the fills at home was what caused the infection but I am not comfortable doing them at all. Especially since I'm on my own with no help holding or detracting her.
Saturday, March 30, 2013
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