Monday, October 25, 2010
There is a possibility that we will be approved for insurance through Jason's work. If that happens and we can get them to view the Nevus as a birth defect and not cosmetic some of the cost will be covered. We are praying that this will come through so that the amount we need to raise will be lower than we thought!
Monday, October 18, 2010
We are currently accepting recipes to be put in a cook book that we will be selling to raise funds and awareness for Haleigh and children with the same condition. If you would like to submit a recipe you can contact me at firstname.lastname@example.org.
Thursday, October 7, 2010
Monday, October 4, 2010
|Mom's front porch|
I really wish others could go with Haleigh and have other moms tell their children she has something on her face. I always smile and say I know, that is the way she was born. I have got the “oh sorry”, the smile because they do not know what else to say and I have been asked 100 questions too.
I can honestly say I out of the 3 I would rather get asked questions. I mean saying you’re sorry? Really for what, I am not sorry she was born this way. God made her that way and I love her I am not sorry. And if you don’t know what to say after that then maybe you should not have said anything to begin with!
Then today I was really unsure how to handle a spot I was in. I was shopping at Winn Dixie they employ people with mental handy caps. I have no problem with that. I think it is great. Except the man who was aching our stuff didn't understand that her face was not dirty and he kept trying to wipe it. They did nothing it was up to me. I had to tell him not to touch my baby! I guess it just upset me. Sometimes, I wonder if everyone looks at her and then at me and wonder why I do not wash her face
Haleigh got up yesterday morning, after not sleeping much, with a runny nose. Yesterday afternoon she started to run fever and coughing. Last night a gave her a warm bath and some Advil and put her to bed, an hour later Jason went into her room to check on her and she was on the floor with her pillow and blanket. She has learned to climb out of her baby bed! She was also so stuffed up and coughing, so I took her out in the night air while Jason sat up her breathing treatment, as she was wheezing too. That was at 10:30 pm, we were then up at 1am for a treatment and meds, 5:30 for treatment and meds. and because Landon had another appointment today my mom gave her one at 10:30am. She woke up on her own coughing and wheezing. So we had to cancel her GI appointment that was to see if we could take her off her formula, the next appointment we could get was for December 16th, yes December 16th, but at least its of this year! She has an appointment in about an hour, I wanted them to listen to her, but I am not sure there is any thing else they can give her, She's already on the breathing treatments. I guess I just want to be sure there is nothing in her lungs and that her ears are clear.