From Left to Right
Back Row
Collin, Madalyn and Katlyn
Front row
Aden, Chloe, Haleigh, Natalie and Landon
Showing posts with label Holidays. Show all posts
Showing posts with label Holidays. Show all posts
Tuesday, April 22, 2014
Easter
From Left to Right
Back Row
Collin, Madalyn and Katlyn
Front row
Aden, Chloe, Haleigh, Natalie and Landon
Sunday, December 1, 2013
Happy Thanksgiving
We had a great family thanksgiving. Everyone gathered together and we shared a great meal. The kids played and the grown ups did too.
There was a Thanksgiving hunt where Madalyn shot her first deer. Collin shot his first a couple weeks ago. This is a big help with eating healthy.
We shopped the day after. Had a great football win on Saturday. War Eagle. We also put up our Christmas tree on Saturday.
And Sunday we had over done it and didn't make it to church. That made us all sad. However we had a good day of recovery and everyone will make it to school on Monday morning, on time. I really love having everyone home. I'm sad they have to go to school.
Haleigh is healing very well and goes back for her follow up on 12/12/13. I've started to put a little antibiotic cream on her because her little scabs are falling off and some are looking a little red. She is not hurting much unless she bumps her face or gets bumped. She is such an amazing strong child.
Saturday, November 2, 2013
Halloween and an Update
Haleigh had a great Halloween. She was Bat Girl. She was so excited, First we went to our church fall festival, then we went trick or treating. Every house She said "Trick or Treat and Thank you" So very cute. I was really glad she was feeling better. I have had sick kids on Halloween and kids who have been in the hospital even on Halloween, its not good, they miss a lot of fun, I am really glad that she was well enough to go out, and enjoy the events. She got lots of great treats, that are being handed out one by one slowly.
11-02-13
We did a 25cc fill last night. The skin and expander felt tight at that amount so we stopped there, even though the water was flowing in nicely still. I kept asking her if she was feeling any pain and she said no. About an hour later she said her bubble hurt. I felt of it, No fever in it, not red, just tight. So I gave her some Advil and she watched The Little Mermaid and went to sleep. Around 3 she woke me up and told me her bubble hurt really bad so I gave her some more Advil and put her in the bed with me, 430am she was tossing and turning so I woke her and she said her bubble still hurts and started to cry. That is the hardest thing about this whole process, you as a parent know you are doing what it right for you child, however you also know that its hard on them, you know that what you are doing is causing them physical pain, and that's hard. But hey no one said being a parent was easy. We make have to make hard choices for our children everyday. So I gave her some Rx pain meds and with in 30 minutes she relaxed and was sleeping. She slept until 11am. Ate and I went ahead and gave her some Advil, she seems to be doing ok this afternoon. playing on her games, running around outside and even fighting with her brothers. All very normal Saturday events.
I am debating on how much to fill next week. We only have 3 fills left. So do I fill as much as I have been and just give her Rx pain meds that night, or do I fill and expand less. We have a goal of 350ish and we are at 310. Only 40cc more to go before goal, and we can "overfill" if we get to that point. Some parents actually fill twice a week in the end, and we could do that, doing less of course. We would do 10-15cc on Thursday and then again on Monday. Its an option. maybe that would keep her from having any pain or discomfort. Its just so hard to know what right is.
I am excited to be done with this expander. I know I keep saying that, but its only because I really am. And Haleigh is so ready to have her bubble out. Just ask her, she will tell you, she's ready.
11-02-13
We did a 25cc fill last night. The skin and expander felt tight at that amount so we stopped there, even though the water was flowing in nicely still. I kept asking her if she was feeling any pain and she said no. About an hour later she said her bubble hurt. I felt of it, No fever in it, not red, just tight. So I gave her some Advil and she watched The Little Mermaid and went to sleep. Around 3 she woke me up and told me her bubble hurt really bad so I gave her some more Advil and put her in the bed with me, 430am she was tossing and turning so I woke her and she said her bubble still hurts and started to cry. That is the hardest thing about this whole process, you as a parent know you are doing what it right for you child, however you also know that its hard on them, you know that what you are doing is causing them physical pain, and that's hard. But hey no one said being a parent was easy. We make have to make hard choices for our children everyday. So I gave her some Rx pain meds and with in 30 minutes she relaxed and was sleeping. She slept until 11am. Ate and I went ahead and gave her some Advil, she seems to be doing ok this afternoon. playing on her games, running around outside and even fighting with her brothers. All very normal Saturday events.
I am debating on how much to fill next week. We only have 3 fills left. So do I fill as much as I have been and just give her Rx pain meds that night, or do I fill and expand less. We have a goal of 350ish and we are at 310. Only 40cc more to go before goal, and we can "overfill" if we get to that point. Some parents actually fill twice a week in the end, and we could do that, doing less of course. We would do 10-15cc on Thursday and then again on Monday. Its an option. maybe that would keep her from having any pain or discomfort. Its just so hard to know what right is.
I am excited to be done with this expander. I know I keep saying that, but its only because I really am. And Haleigh is so ready to have her bubble out. Just ask her, she will tell you, she's ready.
Wednesday, October 30, 2013
We have a date
Surgery to removal the expander and the Nevus is set for November 19th a Tuesday. I got t chose between that day and the Tuesday before Thanksgiving, that would mean Thanksgiving would not be a happy day for Haleigh. So I went with the earlier date. She has a Check up/ pre-op on the 11th. We must keep her well! We have to get rid of his cough and be careful. I understand you cant always keep kids from getting sick especially since I have other kids in school. But, I bought her special vitamins that have extra C in them and after Halloween tomorrow and the Fair on Sunday afternoon, we will be very picky on where we take her. No Wal-Mart for sure. And the week before surgery no Church, no nothing. I am even cutting her birthday small. I know that may sound over the top, but this has to happen on the 19th. I need this to happen with out delays because she is sick. She is ready to be done, I am ready for this part to be over. This has been physically and emotionally draining. The surgery is physically and emotionally draining as well and I am so tired already. I need this to be done before Thanksgiving, way before Christmas! Please pray that Haleigh gets and stays well and that surgery goes well for her.
Saturday, May 25, 2013
Saturday, March 30, 2013
Monday, April 16, 2012
Sunday, December 25, 2011
Wednesday, December 8, 2010
Christmas Time & Other Updates
Haleigh is loving the lights and the tree. When we ride down the road she is always saying "mama mama look look lights!" Its so exciting to see your children so excited about Christmas lights.
We have taken Haleigh to see Santa a few times. The first time was before Thanksgiving, we were just at the mall and didn't expect to see Santa, but he was there and all the kids wanted to talk to him. Haleigh sat in the stroller and did not cry, she took her book he gave her and waved good bye to him. This made me think, we needed to have Santa pictures made, because they would be really good since she was not scared. So the week after thanksgiving we took them to the bass pro shop to have Santa pictures made. Haleigh would not get down, would not talk to him, would not wave! We got their free offer picture of none of the kids looking and Madalyn holding an upset Haleigh. Then we went to a family Christmas party, Santa showed up and as soon as he walked in the door, Haleigh starts screaming like someone was hurting her, it was crazy, but by the time he was going she had waved a few times. This past weekend we went to the Shriners Christmas party for kids they have helped this year. They sent me a invite in the mail in October, we RSVP in November. They fed us lunch and had a DJ playing Christmas songs and other children's songs. Haleigh no plays Head, Sholders, Knees, and Toes all day long! The Shriners are so so nice. The bought Haleigh a gift, a peek a boo baby, she loves it. I think that is going to be it in Santa visits, although Haleigh was not scared at all at the Shriners party.
We have taken Haleigh to see Santa a few times. The first time was before Thanksgiving, we were just at the mall and didn't expect to see Santa, but he was there and all the kids wanted to talk to him. Haleigh sat in the stroller and did not cry, she took her book he gave her and waved good bye to him. This made me think, we needed to have Santa pictures made, because they would be really good since she was not scared. So the week after thanksgiving we took them to the bass pro shop to have Santa pictures made. Haleigh would not get down, would not talk to him, would not wave! We got their free offer picture of none of the kids looking and Madalyn holding an upset Haleigh. Then we went to a family Christmas party, Santa showed up and as soon as he walked in the door, Haleigh starts screaming like someone was hurting her, it was crazy, but by the time he was going she had waved a few times. This past weekend we went to the Shriners Christmas party for kids they have helped this year. They sent me a invite in the mail in October, we RSVP in November. They fed us lunch and had a DJ playing Christmas songs and other children's songs. Haleigh no plays Head, Sholders, Knees, and Toes all day long! The Shriners are so so nice. The bought Haleigh a gift, a peek a boo baby, she loves it. I think that is going to be it in Santa visits, although Haleigh was not scared at all at the Shriners party.
Other news, Haleigh is off her formula, she is on whole milk! We are so excited, we go to the GI on the 16th of December and can not wait to tell him she is doing so well on whole milk.
We are traveled to Birmingham, Alabama to see plastics at UAB on December 28th to see what they have to say! They were willing to do the surgery but seemed to have cocerns about her size. I am still trying to decide what to do.
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| Haliegh playing in the waiting room at UAB Children's South |
I want to again thank all the people who have given money to Haleigh, please know it is all going to her. Some will be used to get her to her appointments, because if we can't get her there what's the point of having all the medical covered?
Haleigh is doing good with her Asthma too, we now have her on the right meds it believe to help her get through the winters. She weighed in the other day a 24 pounds and 8 ounces, and even though her iron level is a little low at 10.6 she is healthy, there is nothing better than hearing the doctors say she's healthy!
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