Tuesday, March 29, 2011

New Places, New faces, Same Questions

Haleigh playing with her cousin Natlie
Since the day Haleigh was born I have been asked questions about her nevus. Although at the time I didn't even know what to call it. I also didn't know what to say, or what to expect. I did know that no matter what the spot on her face turned out to be that as her mom I would always protect her and that her family would accept her no matte what it was. Again at the time I didn't know anything about it.

We have gotten lots of looks, stairs, and questions over the last 2 and a half years ( yes that is right 2 years!) some people have been very sweet in asking in a very gental way, others have been rude and some out right mean! What I have learned though is that most people are just like I was the day Haleigh was born. They have never seen a child with a large nevus any where on the body let alone the face. They don't know what it is and they really do just wanna know. And most of the time I don't mind answering a bunch of questions, to a bunch of people, it brings awareness to nevi and because kids like haleigh are so rare that is a big deal.

I feel like I have really gotten comfortable at the girls soft ball park. There are new famalies that have come in, but most everyone knows who we are and who Haleigh is and they know they can ask me questions and they don't stair. Well my boys started playing at Westside Base Ball Park and I feel like I should put up info flyers so people will stop looking at us like we have extra arms or something.

I have been asked by at lest 20 people this week what her condition is, and I have explained it to everyone of the adults, the kids that have ask I just say "she had surgery" tonight I told about 6 kids that, then they wanna know what kind of surgery, why she had it, I didn't let them ask a third question. I told them a face surgery and then to remove her birthmark. I didn't want to know their 3rd question so I asked them to please move so we could walk by (we were in the bathroom) and they did.

These are the same questions we have been dealing with for 2 years and while again I don't mind answering the how is she and when is the next surgery questions, its so mentally hard to go through the last 2 years 20 times in a week. Its even hardrd to sit and know there is that one person that wants to ask but never does so they sit and stair at you for 3 months! I always wonder what that one is thinking.

And again I know these people really do wanna know, or they would not be asking about her, they would just make comments like the man in target last summer who told me I needed to wash my kids face before taking them to target. He was very embarrassed when I told him it was a birth mark and no amount of washing was going to help it (and that maybe he should think before he speaks!) I could have handled that better for sure, oh well.

The point is that I am tired and our journey has just started. I know haleigh is a strong girl, God would not give a nevus to a weak person, these kids are amazing! I just wish she didn't have to be!

No comments:

Post a Comment